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Hayden's Hope Warrior Run to Cure FA


Sat September 28th 2013
Location: Mason City, IA US 50401 Directions
Type:

This is a service fee for processing your race application.

Additional race information can be found at http://cureFA4hayden.com.
Place
Central Park - Downtown
Mason City, IA US 50401
Description

 

Sign-up times and additional events

Chip timer technology will be used to ensure proper timing and placing of the races.  Awards will be given to top finishers in each age group by gender.

Pre-registration is available on-line and at the FAMILY FUN DAY event on September 7th!  Sign up will also be available on the day of the event for each race starting at 7 AM.  T-shirts are included in the registration fee for the 5k/10k races and will also be sold the day of the race.

 

What is Friedreich's Ataxia?

What is Friedreich's Ataxia?

Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's ataxia. Onset of symptoms can vary from childhood to adulthood. Childhood onset of FA is usually between the ages of 5 and 15 and tends to be associated with a more rapid progression. Late onset FA (LOFA) can occur anytime during adulthood. FARA and the MDA are supporting research that will improve the quality and length of life for those diagnosed with Friedreich's ataxia and will lead to treatments that eliminate its symptoms.

Signs and Symptoms
  • loss of coordination (ataxia) in the arms and legs
  • fatigue - energy deprivation and muscle loss
  • vision impairment, hearing loss, and slurred speech
  • aggressive scoliosis (curvature of the spine)
  • diabetes mellitus (insulin - dependent, in most cases)
  • a serious heart condition (enlarged heart - hypertrophic cardiomyopathy)

These symptoms are not present in all individuals with FA, for example diabetes occurs in about 10-20% of individuals with FA. The mental capabilities of people with Friedreich's ataxia remain completely intact. The progressive loss of coordination and muscle strength leads to motor incapacitation and the full-time use of a wheelchair. Most young people diagnosed with FA require mobility aids such as a cane, walker, or wheelchair by their teens or early 20s.

Race Contact Info

If you have any questions about this race, click the button below.

Questions?
For more information:

Contact information:

If you have questions or wish to complete a paper registration form please contact us at:

cureFA4hayden@gmail.com

or

Sarah Despenas

sdespenas@gmail.com

(641) 903-1984

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