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Most people are blessed a lifetime with their children. Not Colby and Lexi. A realization we are all still struggling to understand as a family.
Axel A. Riordan is a loving addition that was born October 15 2017, completing their home as a family of 4. He was a happy healthy growing boy, completing all milestones the first year of life. However after his 2nd birthday, Axel still struggled with walking. After multiple doctor appointments and various delayed testing with no answers. No direction. No sense of urgency. Lexi presented Axel to the children’s ER with concern, in an attempt to get a fresh set of eyes on her son. It was during that admission Colby and Lexi were told the news that every parent fears. Extensive testing revealed that Axel suffered from a severe, degenerative, fatal condition with a life expectancy of 5-10yrs. Early Infantile Metachromatic Leukodystrophy (MLD)
To say Colby and Lexi are devastated is an understatement. This disease is progressive! And within a few short months, they have already witnessed Axel losing simple abilities such as sitting up and swallowing. Eventually this will spread, affecting his vision, hearing, and breathing. He will struggle with a constant state of pain due to the nerve damage. In order to stop the rapid spread of this disorder it is imperative to get Axel involved in clinical trials offered at select facilities across the country. This is our only hope to slow the progression of this nasty disease.
Submitting Your Result
An important part of this Virtual Race is submitting your time so that you can see how you rank, much like a traditional run. Beginning November 15th you will be able to submit your time. To submit your virtual time, click on the link below. (Note: link will not work and you cannot submit a result prior to November 15th) By your name, click EDIT TIME. You can submit results from Nov 15 to Nov 22. Final results will be available at the same link Nov 23.
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