FOXP1 Syndrome Race for Awareness 5k

We are back with the 3rd Annual Virtual FOXP1 Race for Awareness 5k Hosted By The International FOXP1 Foundation!

The money we raise will help provide family support to those affect by FOXP1 Syndrome and further research into the FOXP1 gene. The first FOXP1 Research Conference for Scientists will be July 7-9, 2024 and the next family meet up will be hosted in the Netherlands June 2025. Both events are incredibly important to the FOXP1 community and the medical world. Making the connections between those who are affected and research, is key to furthering the growth and potential for our loved ones with FOXP1 Syndrome.

FOXP1 syndrome is considered a rare disease that is caused by a mutation or change to the FOXP1 gene. The gene is located on chromosome 3 and includes the instructions or “recipe” for making the FOXP1 protein.  As a member of a family of transcription factors, it is vital in regulating the expression of other genes.  FOXP1 controls when and how specific genes affect the development of the nervous system, along with many other systems. When a gene like FOXP1 does not function properly it can lead to a wide range of developmental delays and medical needs. 

The International FOXP1 Foundation is a registered non-profit organization that is managed and staffed by parent volunteers. We are committed to supporting those who have been impacted by FOXP1 Syndrome and we strive to establish regular venues for fundraising in an effort to further research and possible treatments.

Let us come together to raise awareness for our loved ones with FOXP1 Syndrome. This is a time for us celebrate their successes and the joys that they bring to our lives, while also teaching our communities about FOXP1 Syndrome. 

Thank you for your support! We cannot wait to run/walk/roll with you and raise awareness of FOXP1 Syndrome!

How a virtual race works: you pick the location, you pick the start time, time your 5k, and use the BIB number assigned to you at registration to log your time on the website. You can register individually or create a team with a personal fundraising goal. It’s easy and fun! 

How to register: Click the “sign-up” button to sign up. After you sign up, a BIB number will be sent to you. You will use this bib number to enter your race time through the website. You will be able to see each participant’s time and place as they are entered into the portal. Registration is currently open, and you will be able to walk/run anytime between August 9, 2024 12:00am EST-August 11, 2024 11:59 EST.