Anthony is on the Move for Nevus Outreach 5k & 1 Miler

For those of you who don't know us or our story, my name is Jenna VanDerzee and my husband is Anthony. Our pride and joy, rare baby boy, is Anthony Jr. Anthony has a very rare skin condition called Congenital Melanocytic Nevus (CMN). Anthony was diagnosed at birth, but there were no previous idicators of CMN. On the day he was born, a day where parents should feel nothing but joy, our intial emotions were fear and uncertainty. 

The time leading up to becoming parents was so exciting and a little nerve wracking. Anthony and I were beyond thrilled when we found out I was pregnant. We decided we did not want to find out the gender of Baby V. I had an easy pregnancy with zero complications and we could not wait to meet our baby!  On September 4, 2017 my water broke around 11 o’clock in the morning. Shortly after, the two first time parents packed the car with all the bags and pillows eager to meet our little one and find out if Baby V was a boy or a girl. Baby V did not come as soon as we expected. 15 hours later after an emergency C section on September 5, we met our greatest blessing, Anthony Frank Vanderzee Jr. Anthony was the first to tell me that it was a boy, but amongst his excitement to announce, it was a boy, came some silence. They briefly showed me my son only for a nurse to come over and tell me that he had to go to the NICU due to “spots” all over his skin. No one in the delivery room was sure as to what our son had, therefore no one could give us any answers as to what was going on.