Events
Place
W220 N7884, Town Line Rd
Menomonee Falls, WI US 53051
Description
Cornelia de Lange Syndrome (CdLS) is a rare genetic disorder that is present from birth. It causes such a broad range of potential physical, cognitive, and medical challenges that it is now known as the CdLS spectrum disorder. CdLS does not discriminate—it affects both genders equally and is seen in all races and ethnic backgrounds. The occurrence of CdLS is estimated to be 1 in 10,000 live births, but because it is so variable, it could remain undiagnosed. The Run for CdLS 5K and 2-mile walk events aim to raise funding and awareness for the CdLS Foundation and the community it cares for, including my son, Zach. Proceeds raised at the event will go to the Foundation and its incredible work. For more information, please visit www.CdLSusa.org.
Meet Zach
Meet Zachary Isaiah Guran! He is 3 years old and was born with a rare syndrome called Cornelia de Lange Syndrome. Zach is an incredibly resilient kid. He consistently deals with some sort of discomfort daily. He struggles with hearing, and he is non-verbal which makes communication and caring for Zach very complicated. Some of his biggest challenges include feeding, swallowing, digestive discomfort, gaining weight (failure to thrive), low muscle tone, severe acid reflux, small hands, limbs, and feet, a weakened immune system, and several developmental delays. My wife and I have learned how to manage Zach’s needs, but we still don’t always get it right and are constantly learning new ways to help him as time goes on. It has been a difficult journey to say the least filled with unpredictable twists, medical mysteries, and scary moments. With that said, being his parents has been equally as rewarding.
Zach's Story
Click the icon below to download the attached PDF.
Schedule and Packet Pickup
Schedule
8:00am packet pickup open
9:00am run/walk starts
Tshirts
The shirts are unisex cotton and those registered noon August 15th are guaranteed a custom race shirt. After that, shirts be available while on line supplies last.
I want to change something...
HOW TO TRANSFER, DEFER, CHANGE SHIRTS SIZE, & CHANGE DISTANCES
- Login into RunSignUp.com
- Select your Profile.
- Scroll down to the race you would like to modify.
- Select "Manage Registration".
- All of the race options will be listed on the menu (transfers, change shirts size, modify team, change distances, resend confirmation / QR code & deferrals)
Aid Station
There will be one aid station on course with water.
Awards
Overall Awards
Overall Male & Female runners for each distance will receive a custom award.
Age Group Awards
Top 3 male & female finishers in 5 year age groups will receive a custom award. Age groups are 0-14, then every 5 years.
Volunteers
We need volunteers for everything from aid station support to course marshals. If you or your group have an interest in volunteering, we would greatly appreciate the assistance. All volunteers can run a future race at no charge. Register to volunteer by clicking on the volunteer link in the menu above. For more information on volunteering click here.
Timing
The race is chip timed by Silver Circle Sports Events, LLC with a chip start. Your time will start when you cross the start line and stops when you cross the finish line.
Course
The course begins in beautiful Menomonee Park and uses the Bugline Trail (paved) for an out and back 5K.
Parking
Parking is available at the parks. There is a $7.00 county park day pass or an annual pass required. Both the annual pass and daily pass must be purchased online BEFORE the event. There is NO in person payment available.
Silver Circle Sports Events
This event is a Silver Circle Sports Events, LLC produced, timed & managed event. Need help with an event?
Race Contact Info
If you have any questions about this race, click the button below.
