Additional race information can be found at http://www.jwshope.com.
Manhattan, KS US 66502
JW's Epilepsy Walk began 9 years ago to raise epilepsy awareness. JW Lister is 13 years old and began having seizures at 23 months. He was diagnosed with epilepsy and getting his seizures controlled and understanding the disorder was a struggle. In 2013, we found a wonderful epileptologist at the Cleveland Clinic that studied JW’s case thoroughly. The new treatment kept JW seizure free for over 3 years. Three Novembers ago he had a breakthrough seizure, which proves the sad reality that there is no cure for epilepsy. Even with the break through seizure, we are still very thankful that JW's EEG's are normal and he does not have to take daily medication.
1 in 26 people have had seizures and at least 70% live with uncontrolled seizures. Epilepsy is a highly complex disorder and sadly, 30% will never find the cause.
Please help us raise awareness right here in our community by participating in our 10th annual 1 mile walk on April 30, 2022. All of our proceeds will help epilepsy fighters through the Chelsea Hutchison Foundation (http://www.chelseahutchisonfoundation.org/). When JW’s seizures were at their worst, they granted us a bed monitor to detect seizures while sleeping. They also fund other alerting devices, seizure response dogs and provide support for families fighting epilepsy. This foundation was a blessing to us when we were lost and looking for support. Each year, proceeds from our event go to The Chelsea Hutchison Foundation to help purchase monitors for those with epilepsy, including local families. The proceeds from previous years has helped a local family travel to a very informative expo at Disneyland and has also provided life saving monitors to local families. Please join us and invite your friends and family to run and/or walk with us and raise awareness.
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