Run for CDH1 - 2023

We are back with the 2023 Virtual Races to spread awareness about the options in genetic testing and how it can SAVE LIVES. You can run/walk your race anytime and anywhere. You could bike, roll or do a pub crawl.   Honestly you can sign up and do nothing, totally up to you.   Here is why I have a calling to do this.  

Hi, My name is Amy, and I tested positive for the CHD1 gene, which causes stomach and breast cancer.  In the process of getting ready for a total gastrectomy and double mastectomy we discovered that I actually already had breast cancer.  (An undetectable type that would not otherwise have been discovered, even with my yearly mammograms and breast exams etc.)  After a lumpectomy, a gastrectomy, double mastectomies, and removal of additional lymph nodes removed, it was confirmed the cancer had spread.  I then underwent Chemotherapy followed by Radiation. 

One of my sisters also has CDH1, hers was caught earlier than mine.  Thanks Sis for PAYING ATTENTION to our family history.  I have since had a cousin test positive and a niece as well,  This is what is driving my mission.  If I had known genetic testing was a simple option a couple of years earlier,  my journey would have been quite different and we could have caught things before they spread.  Worse yet, a couple more years without the findings I likely would not be here typing this at all. 

Last year we were able to raise over $9,000 to donate to Mackinac Straits Health Foundation, No Stomach for Cancer, and University of Michigan Rogel Cancer Center.

All proceeds from these races will benefit Genetic Testing Awareness, Cancer Research, Patient Assistance, Mackinac Straits Health Foundation and No Stomach for Cancer and potentially SAVE LIVES!