Race For Rare Kids on Lake Michigan 5K and 1K Kids Dash

Sat September 18, 2021 Saint Joseph, MI 49085 US Directions
Race Website

Additional race information can be found at http://www.tbckfoundation.com/raceforrarekids.

Place
Margaret Upton Arboretum 280 Water Street
Saint Joseph, MI US 49085
Description
ABOUT THE RACE
Race For Rare Kids on Lake Michigan is an inclusive 5K race for participants to run, walk, or roll also including a 1K Kids Dash. This year is our 2nd year (3rd if you count last year's virtual race!) Race for Rare Kids is dedicated to the advocacy, education, and support for families proud to call someone they love "rare." Our event hopes to raise awareness for any person taking on a unique journey with a disability or developmental difference while raising funding for the rare disease non-profit for children, The TBCK Foundation.

Follow us on social media: www.facebook.com/tbckfoundation and @tbckfoundation on Instagram

 
ABOUT THE TBCK FOUNDATION
The TBCK Foundation is a rare disease non-profit founded for research, advocacy, and education of the rare pediatric neuro-genetic disease, TBCK Syndrome. Part of the mission of The TBCK Foundation is accelerating research for TBCK Syndrome, which remains under-researched with limited understanding of the disease. Our other focus is supporting TBCK families and other "rare" families as they navigate through the world of disability and raising medically-complex children. 
The TBCK Foundation is a rare disease non-profit, but our efforts extend beyond only rare disease, as we believe in the importance of a more inclusive, accessible, adaptive, and empathetic world.
 
COVID SAFETY PRECAUTIONS:
We want to keep all children and adults safe, especially considering some of our participants may be immuno-compromised. Face masks are not required outdoors, but per MDHHS and CDC recommendations,  face masks are recommended for unvaccinated individuals in crowded areas. 
 
REGISTRATION DETAILS:
Registration for the 5k is available until September 4 for $25. This includes a race bib and race t-shirt!
Late registration begins September 5 through Race Day is $30. We may not be able to guarantee t-shirt availability after September 5!
Registration for the Kids Dash 1K is available until September 4 for $15. This includes a race bib, race, t-shirt, and special "advocate" or "VIP" gift! 
Late registration for the Kids Dash begins September 5 through Race Day for $20. We may not be able to guarantee t-shirt or gift availability after September 5!
BE SURE TO REGISTER EARLY!
 
REGISTRATION FOR A "RARE VIPS" (PERSON/CHILD WITH A DISABILITY):
Our goal is to celebrate diversity! We want to celebrate our rare kid VIPs!
"Rare VIPs" are someone who has a different ability, disability, or developmental difference. This might be a diagnosis of ASD, cerebral palsy, down syndrome, sensory processing disorder, or an undiagnosed disability.
Be sure to indicate if you are registering a "Rare VIP" and mention if there are any specific dietary or sensory needs that can be considered. Our event is about empowering kids with disabilities and their non-disabled peers to embrace differences and diversity!
If you have a cape from 2019, please wear it to the race! 
 
PRE-RACE REGISTRATION:
Early packet pick-up is Friday, September 17 4:30-7pm at North Pier Brewing Co. 670 N. Shore Dr. Benton Harbor, MI 49022

 

RACE REFRESHMENTS:
Water bottles, donut holes from Red Coach Donuts, apples from Alex's Veggies will be provided in a Covid-safe set-up to ensure the safety of participants. Dietary restrictions are requested in your registration in order to accommodate those needs!
If you want to bring your own water bottle, there will be coolers to fill-up!
There will be one water station on the course (about half way on the course.)
 
ACCESSIBILITY:
Strollers and wheelchairs are allowed (and encouraged!) and the route is fully accessible. If there are specific mobility needs requested, please email tbckfoundation@gmail.com
 
PARKING:
Parking is available at the Berrien County Court House. Follow the ramp around or there are stairs by the bridge down to the Arboretum. There is limited parking in the Arboretum parking lot, we kindly request those spaces be left for families with wheelchairs and strollers. 
 
BECOME A SPONSOR!
We love partnering with businesses and individuals that are advocates for our kids! Become a sponsor here!
 
WANT TO VOLUNTEER?
Sign-up here to join our team of amazing volunteers!
 
AWARDS + AGE CATEGORIES:
We are excited to share top winners will receive gift cards from two of our favorites: Watermark Brewing + Connected Soles
AGE GROUPS:
Overall Female + Male 1st, 2nd, + 3rd 
13 and Under Female + Male
14-17 Female + Male
18-34 Female + Male
35-49 Female + Male
50-64 Female + Male
65-79 Female + Male
80+ Female + Male
 

 

STAY CONNECTED!
Follow us on Instagram and Facebook! We will post photos from the race, information about sponsors, and other important information!
 
Race Contact Info

If you have any questions about this race, click the button below.

Directions
Facebook

Join this event and invite your friends on Facebook.

Race Participant Survey

Please complete the following survey to help us better understand your race experience.

Did you participate in the race?

Would you recommend this race to a friend?

If you continue to use this site, you consent to use all cookies. We use cookies to offer you a better browsing experience. Read how we use cookies and how you can control them by visiting our Privacy Policy.

If you continue to use this site, you consent to use all cookies.