Events
Description
Please join us for a 5k to raise money and awareness towards healing PANS and PANDAS. Money raised will be donated to ASPIRE, (The Alliance to Solve PANS and Immune-Related Encephalopathies). This is the start of what we hope will be an annual event.
The race is setup as a virtual race, where you can organize locally to show support for all of our kiddos who are fighting this illness.
What is PANS/PANDAS?
PANS is an acronym for Pediatric Acute-Onset Neuropsychiatric Syndrome. PANS is a clinical condition defined by the sudden encephalitic-like onset of obsessive-compulsive symptoms and/or severe eating restrictions and at least two concurrent cognitive, behavioral, or neurological symptoms. PANS has multiple etiologies and disease mechanisms. PANS and PANDAS require a clinical diagnosis based on a child’s medical history and physical examination. Symptoms cannot be better explained by another diagnosis. There is no age restriction for a PANS diagnosis.
PANDAS, a subset of PANS, stands for Pediatric Autoimmune Neuropsychiatric Syndrome Associated with Streptococcus, specifically Group A Strep (GAS) infections, which can occur in many parts of the body – not just the throat. The onset of symptoms can occur within days of contracting strep, or within several months of the inciting infection. You may have heard the term PANDAS more often but PANS is the umbrella term.
Additional information about ASPIRE, as well as further education about PANS and PANDAS can be found at https://aspire.care.
Race Contact Info
If you have any questions about this race, click the button below.
