2021 Vegas Cares About Rare Kids VIRTUAL 5K/1M Charity Race

Sun February 28, 2021
Events

Virtual Runner/Walker

$35 Registration ends February 20, 2021 at 11:59pm PST
Description

We are inviting walkers and runners from Las Vegas and beyond to come together for an inspiring virtual 5K or 1-mile walk, run, or swim that can be done from anywhere in the world!  

The Vegas Cares About Rare event is scheduled on February 28, 2021, to coincide with World Rare Disease Day, raising awareness to the millions of people affected by a rare disease.  Due to COVID-19 pandemic concerns and to protect the health of our medically-complex and medically-fragile VIP kids, we have decided to host this year's race virtually!  During the entire month of February leading up to the event, we will be sharing stories and videos of these amazing children, their siblings and their families. We will be encouraging race participants to post their photos, experiences, and results on social media to spread awareness and happiness using #VegasRare5K. 

All participants will receive our custom medal and racing bib.  For an additional $10, you can register for a limited-edition t-shirt that will be sent directly to your home or be available for packet pickup the week before the event at Cornerstone Park in Henderson (social distancing and COVID precautions will be in place).

Now, more than ever, our local kids affected by rare diseases need our help. This event has historically been our largest fundraising event each year.  Your participation in this virtual event translates to much-needed funding to help us continue to provide medical and therapy equipment, educational scholarships, and family support. 

Don't want to register but still want to donate? Every contribution, no matter how large or small, will make a difference.

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Show your support for Childhood Rare Disease Awareness and cheer our special VIP children affected by rare diseases at our 5th Annual 5K and 1M run supporting The Little Miss Hannah Foundation (LMHF).  The organization's mission is to help enhance the quality of life for young children diagnosed with rare, life-limiting, or undiagnosed complex medical needs, as well as children who have been placed in hospice or palliative care.  The foundation also gives parents the necessary tools and financial assistance to empower them to meet their child’s unique medical and lifestyle needs, as well as provide support resources and special attention for their other children.  We also work to provide support groups for all members of the family by providing fun, family-focused and sibling-focused events and activities.

Did you know:

  • There are over 7,000 rare diseases in the world
  • Rare disease affects 1 in 10 Americans
  • More than 50% of rare diseases affect children
  • 30% of children diagnosed with rare and genetic disorders don't live to see their 3rd birthday 
  • 55% of families will incur direct medical expenses not covered by insurance. 

Many times, families affected by rare disease struggle to obtain expensive medical and therapy equipment designed to provide safety to these children and to improve the quality of their lives. The Little Miss Hannah Foundation provides this equipment at no cost to the families to enhance the quality of life of their children. Meet some of our special kids at our event!

Place
VIRTUAL
Run Website

Additional run information can be found at http://www.VegasCaresAboutRare.org.

PACKET PICKUP DETAILS:

Friday, February 19, 2021
Cornerstone Park
1600 Wigwam Parkway
Henderson, NV
TBD

Run Contact Info

If you have any questions about this run, click the button below.

Questions?
About the Little Miss Hannah Foundation

The Little Miss Hannah Foundation is a Las Vegas-based 501(c)(3) nonprofit organization that was started in memory of Hannah Ostrea, diagnosed with the ultra-rare genetic disorder Gaucher Disease type 2. During Hannah’s life, there were many things that the Ostrea family needed to help manage Hannah’s care and enhance her quality of life. Because her disease was so rare, there were very few services available to them in the Las Vegas area. After she passed away at the age of 3 years 4 months in December 2011, the Ostrea family decided that they would create an organization that would directly help other local rare and medically complex families by supplying the equipment and services we were so desperately in need of during Hannah’s life.

Our Programs:

Our organization staff is completely volunteer-based and made up of some amazing family, friends, and community leaders who believe that children like Hannah deserve so much love and support. We encourage our Las Vegas community to join us in providing the best quality of life we can to children diagnosed with rare, life-limiting and medically complex conditions in our town.

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