Reef's Run 5K

Sun September 26, 2021 Directions
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Reef's Run for Hydrocephalus Awareness

9:00AM PDT - 12:00PM PDT
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Round Hill Pines Beach Resort
300 Hwy 50
Zephyr Cove, NV 89448

With our community healing and everything up in the air, we will tentatively be holding our 4th Annual Reef’s Run for Hydrocephalus Awareness on Sunday, September 26, 2021. Racers can don costumes on this Fun Run / Walk / Stroll through picturesque Lake Tahoe.  We will start and end at Round Hill Pines Resort.  Participants can enjoy coffee, water, juice, and snacks before the race, a complimentary beer, for those over 21, after the race, as well as light snacks and desserts.  Make sure to stay for our Lake Plunge and we will keep you posted if we are able to hold our silent auction and raffle.  Net proceeds will be going to charitable foundations actively searching for a cure for hydrocephalus, charities helping families in need, and directly to families in need, on a word of mouth basis.  Last year we were able to give over $8,000 to local families in need!

Hydrocephalus is a little-known condition that affects more than 1,000,000 Americans, including my son Reef.  Normal Pressure Hydrocephalus (NPH) is the abnormal accumulation of cerebrospinal fluid (CSF) that causes the ventricles in the brain to become enlarged. Reef was born 9 weeks early and developed Hydrocephalus due to complications of prematurity.  Before Reef was 17 months old he had undergone 6 brain surgeries due to malfunctioning shunts.  As it sits we are at our longest stretch of over 3 1/2  years brain surgery-free! 

This unique event will spread smiles, a sense of community, and a winning spirit.  This event will not only raise awareness for hydrocephalus, which affects 1-2 in every 1,000 babies born, but it will also help to raise funds to support research for a much-needed cure.  The only treatment for hydrocephalus is brain surgery and 40,000 operations are performed annually, that’s one every 15 minutes.

COVID-19 UPDATE:  We believe that coming together for this great cause is best done in person, so we have made the decision not to host a virtual race.  We are taking all necessary precautions to keep you and ourselves safe.  If you have COVID-19, COVID-like symptoms, or have been in contact with anyone with COVID-19 just prior to race day, please stay home, and support us from afar.  We will keep you informed and will implement additional measures to ensure the health and safety of our community as necessary. 

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  • Normal Pressure Hydrocephalus (NPH) is an abnormal accumulation of cerebrospinal fluid (CSF) that causes the ventricles in the brain to become enlarged, sometimes with little or no increase in intracranial pressure (ICP).
  • The only treatment for hydrocephalus is brain surgery where a shunt is placed to drain the excess spinal fluid.  New techniques like Endoscopic Third Ventriculostomy (ETV) with Choroid Plexus Cauterization (CPC), are starting to come forward but only a handful of surgeons in the country are trained to do so.
  • The primary treatment uses a device (shunt) developed fifty years ago that has one of the highest failure rates of any surgical treatment.
  • Reef's VP shunt is a tube placed through the skull and into a ventricle in his brain.  The tube is connected to a valve which regulates the spinal fluid buildup.  A tube is connected to the valve and goes behind his ear, across his chest, and coils into his abdomen where the spinal fluid can be reabsorbed.
  • A shunt malfunction can happen at any time.
  • 40,000 hydrocephalus operations are performed annually.  That’s one every 15 minutes.
  • The medical costs of treating hydrocephalus are over $1 billion per year, yet the National Institutes of Health (NIH) invest less than $1 million per year in hydrocephalus treatment.
  • Hydrocephalus is the most common reason for brain surgery in children.
  • 1,000,000+ Americans live with Hydrocephalus
  • 1-2 in 1,000 infants are born with Hydrocephalus
  • 1 in 100 seniors develop normal pressure hydrocephalus, which is often confused with Alzheimer’s
  • 1 in 10 dementia patients have normal pressure hydrocephalus, but may never be diagnosed
  • NPH is often misdiagnosed as Alzheimer’s or Parkinson’s because of the triad of symptoms: mild dementia, impaired bladder control, gait disturbance.
  • 80% of all shunts fail, 50% of those fail in the first 2 years of placement.
  • A child will on average have 2-3 shunt replacements during their childhood.
  • Hydrocephalus can only be treated with BRAIN SURGERY, and there is currently NO CURE.
  • September is Hydrocephalus Awareness Month
  • 60% of children with hydrocephalus will not be independent as adults
  • It really IS brain surgery, but it shouldn’t have to be.

Round Hill Pines Beach Resort
300 Hwy 50
Zephyr Cove, NV 89448


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