Tanya’s Trot For Epilepsy

September 25, 2022
Start time: 2:00pm
Veterans Park
Buell Street at Skyline Drive, Akron, New York 14001

5k run/walk through and around beautiful Akron Falls Park. Music, refreshments, basket and side raffles. Doors open 12:00 pm. Race proceeds to fund organizations for understanding epilepsy, its conditions, treatment and research. In memory of Tanya Johannes who was lost to SUDEP (Sudden Unexplained Death in Epilepsy).

Proceeds to benefit: 4 Paws for Ability

5k Run

5K Walk

Epilepsy Information Booth

Basket and Side Raffles

Light Refreshments

Awards Ceremony

Certified Course NY14055JG <--- click for official map.

Epilepsy affects nearly 3 million people in America. Awareness and understanding can help increase safety for those who have a seizure, improve the social and educational atmosphere for children, and encourage individuals to reach their full potential. It is not a condition you can see when looking at someone, but it is a condition you cannot forget.

There is a lack of awareness associated with Epilepsy. People who do not a have a loved one or had a personal experience to the condition do not understand the
impact it takes on your life. The efforts that one has to go through to attempt to control the condition is long, difficult and unclear. The condition varies from person
to person and each individual’s treatment varies greatly.

We have chosen to take the first steps by raising awareness. Next we need to raise the funds needed to understand, research and develop treatment for this
condition.

TANYA'S TEAM

Tanya’s Team was formed in honor and memory of Tanya Johannes who passed away in November 2010 from complications associated with epilepsy. Tanya had been suffering seizures for the past 11 years and was only 25 years old at the time of her death.

On Sunday, March 27, 2011, twenty-five relatives and friends of Tanya traveled to Washington DC as Tanya’s Team to participate in the fifth annual National Walk for Epilepsy. The National Walk supports the Epilepsy Foundation’s mission to stop seizures, find a cure and overcome the challenges that are created by epilepsy.

Tanya’s Team raised over $7,400 for the Epilepsy Foundation through contributions. Collections were taken at local businesses and restaurants, in and around Tanya’s hometown of Akron, NY.

The event has two goals. The first is raising funds for the treatment and research of epilepsy. The second goal is to raise awareness of epilepsy and its impact on the lives of those who have the condition. Since its founding, Tanya’s Trot for Epilepsy has raised nearly $200,000 towards the fight against Epilepsy!