PSA5K

Join us September 15th, 2024 for the PSA5K.  Come Run, Walk, or Cheer on as we raise awareness for Poland Syndrome.  This years event will start and finish at the Yankee Distillers.  There will be food trucks, cocktails to purchase as well as a 50/50 raffle.  Come celebrate with everyone and raise awareness of Poland Syndrome.

Registration will open at 10 AM at the Yankee Distillers 5 Fairchild Square, Clifton Park, NY 12065  

11:00 AM - Kids Fun Run 

11:30 AM - 5K run and 3K walk

Awards and refreshments will follow the completion of the 5K and 3K

For more information go to :   https://psa5k.com/

WHAT IS POLAND SYNDROME?

Poland syndrome is a disorder in which affected individuals are born with missing or underdeveloped muscles on one side of the body,  resulting in abnormalities that can affect the chest, shoulder, arm, and hand. The extent and severity of the abnormalities vary among affected individuals. People with Poland syndrome are typically missing  part of one of the major chest muscles, called the pectoralis major. In most affected individuals, the missing part is the large section of the muscle that normally runs from the upper arm to the breastbone  (sternum). The abnormal pectoralis major muscle may cause the chest to  appear concave. In some cases, additional muscles on the affected side of the torso, including muscles in the chest wall, side, and shoulder, may be missing or underdeveloped. In severe cases of Poland syndrome, the spine can be fused or malformed. This can lead to thoracic deformations and respiratory challenges.  Certain bone defects could be present in people with Poland syndrome. This includes an underdeveloped or absent portion of ribs and cartilage where the ribs attach to the sternum.