Out Run Rett 5K

Sat May 5, 2018 New Suffolk, NY 11956 US Directions

5K Run/Walk

9:00AM EDT - 12:00PM EDT
Race Website

Additional race information can be found at https://reverserett.org/take-action/events/out-run-rett-5k-2018/.

Main St & 1st St
New Suffolk, NY US 11956
Run, Walk, Cheer, SO SHE CAN

Maren, of Mattituck NY, was diagnosed with Rett Syndrome in December 2012. Right after her first birthday, our bubbly and babbling baby girl almost overnight and completely unexpectedly, lost her words and the ability to stand, walk, and use her hands. In the last years, Maren has become essentially “locked in” a body that does not work and sidelined from even the simplest of activities. Rett takes so much from Maren and we are so fearful of what could still come. We hear daily about families facing difficult choices on feeding tubes and scoliosis surgery, girls in the ICU struggling with pneumonia, and the worst but all too common, a young girl losing her fight to Rett. Unfortunately, Maren is not alone. Two towns over, Rachel is also battling Rett and together, they join a too long list of 350,000 people with Rett.

But along with this terrible diagnosis comes amazing and tangible hope. Rett is a single gene disorder and scientist have reversed Rett in the lab. Advances in gene therapy are pointing the way to fixing the disorder at its very core in human patients with the first clinical trial possible in 2019. Out Run Rett is an opportunity to raise needed research funds to accelerate progress—we are truly out running Rett. Our Run Rett has also become a celebration of the wonderful Southold Town community that shows so much love and support for two of its youngest residents. We are so grateful to so many for all the support over the years. So, come join us on beautiful North Fork this spring and run, walk or cheer so that one day she can.

Teams welcome. And because they were so much fun last year, superhero costumes encouraged.


Awards given to top 3 in each age category as follows: 
 1-10     11-20     20-29    30-39    40-49    50-59    60-69    70-99

Teams Welcome. Superhero Costumes Encouraged. Sponsorships Available.

Can't join in person? Donations of any amount appreciated.

ALL FUNDS GO TO RESEARCH. Donations and sponsorships are fully tax deductible.


  • ALL PROCEEDS GO TO: Rett Syndrome Research Trust
  • Please obey all parking restrictions and note that road will not be closed to traffic during race.
Race Contact Info

If you have any questions about this race, click the button below.

Course Map

Click the icon below to download the attached PDF.


Join this event and invite your friends on Facebook.

Race Participant Survey

Please complete the following survey to help us better understand your race experience.

Did you participate in the race?

Would you recommend this race to a friend?

We use cookies to offer you a better browsing experience. Read how we use cookies and how you can control them by visiting our Privacy Policy. If you continue to use this site, you consent to use all cookies.