Events
Race Website
Additional race information can be found at https://www.eventbrite.com/e/battling-batten-disease-5k-run-and-family-walk-2019-registration-70800539319.
Place
Scioto Audubon Metro Park,
Columbus, OH US 43215
Description
Join us for the 2019 5K and Family Walk at Scioto Audubon Metro Park. This fundraising event is organized by a group of volunteers in memory of Celia Betz and her brave fight against Batten disease.
Batten disease, or Neuronal Ceroid Lipofuscinosis (NCL), is a family of rare terminal diseases caused by autosomal recessive genetic mutations resulting in the body. These genetic mutations disrupt the cells' ability to dispose of wastes. Cells are thrown out of balance with the build-up of proteins and lipids (fats). There are 13 known forms of Batten disease and yu will often hear them referred to as CLN1-CLN14. It is estimated that 2-4 births per 100,000 in the U.S. are affected by Batten disease, though some researchers in the field suggest these numbers are low. There is currently no cure.
The 5K course will include a loop through the Scioto Audubon Metro Park and an out and back section on the Scioto trail.
Race Contact Info
If you have any questions about this race, click the button below.
Race Day Schedule
- 8:30AM Race Day packet pickup and registration open
- 9:30AM Kids' Fun Run
- 9:45AM 5K Run/Walk and 1 Mile Walk starts
- 10:30AM Awards presented and Post Race ceremony
Early Packet Pickup
November 3, 2019 there will be packet pickup from 10:30AM to 12:30PM.at the Front Runner store, 1344 W Lane Ave, Columbus,
Directions
Join this event and invite your friends on Facebook.
Race Participant Survey
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