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Perk Up Hemophila Half Marathon

Sun August 21, 2016 Pennsburg, PA 18073 US Directions

Events

Half Marathon

8:00AM EDT

Race Website

Additional race information can be found at http://www.perkuphalfmarathon.com/.

Place

200 Seminary St
THE PERKIOMEN SCHOOL
Pennsburg, PA US 18073

Description

 The Perk Up Half Marathon is a chipped timed, challenging course combining rolling hills and beautiful scenery in the Upper Perkiomen Valley.   Proceeds from the run benefit the Eastern Pennsylvania Chapter of the National Hemophilia Foundation.
 
What is hemophilia?
A genetic bleeding disorder that prevents the blood from clotting normally
There is no cure
Treatment involves injections of medication multiple times per week beginning from birth
Hemophilia treatment is among the most expensive in the world with a total annual cost per patient ranging from $60,000 to as much as $1,000,000 for some patients
 
Where does the money go?
Research grants
Patient services, including MedicAlert bracelets and protective clothing for children, such as comfy caps to prevent brain bleeds
Camp opportunities for children
Educational programs and events

Race Contact Info

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