The 5th Annual FOXP1 Race for Awareness Hosted by Mia's Movement
Cost: No minimum donation required (suggested $35.00/person)
Date: August 8, 2026
Time: 840a start time
Location: Our Lady of Mount Carmel Sports Fields (14598 Oak Ridge Rd, Carmel, IN 46032 )
We appreciate all donations, no matter how big or small.
Please join us in raising funds and awareness for FOXP1 Syndrome
FOXP1 syndrome is a rare genetic disorder characterized by delays in early motor and language milestones, mild-to-severe intellectual deficits, speech and language impairment and behavior abnormalities. As the condition is still being studied, researchers are learning more about its impact on neurodevelopment.
Mia (Amelia), was diagnosed when she was 10 months old. She was the first in Indiana diagnosed, and she was one of only several hundred in the world diagnosed at that time. Our FOXP1 community has grown since her diagnosis, but it is still very rare with many unknowns. Mia is now 8 years old and lives life to her absolute fullest. She just finished kindergarten and will be entering 2nd grade next school year. She is a true extrovert and thrives being around other people, especially her 3 sisters. Alanna (11yr), Ruth (6yr), and Joan (5yr) are her 3 favorite people and they all push and encourage her to be the best version of herself. Mia's happy place is outside. Her favorite things to do are jump on the trampoline, go to playgrounds, take walks, swing, and have dance parties.
Although her diagnosis was completely unexpected, we have learned time and time again that God's plan is bigger and better than anything we could have ever expected. Each year brings new challenges for Mia but with God guiding us and our amazing family and community surrounding us, we know she will grow to be exactly who God wants her to be. We thank each of you deeply for your endless love, support, and generosity.
All donations to the International FOXP1 Foundation are sent directly to the International FOXP1 Foundation (www.foxp1.org). They will be used to help support families who are directly affected by FOXP1 Syndrome, along with funding research into the FOXP1 gene.
