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For a Community. For a Cause. For a Cure.
Run for A-RARE-NESS
We invite you to come out and join us on Saturday May 6th, 2023 for the 3rd Annual Run for A-Rare-Ness and Wiffle for a CURE! A day full of fun with food trucks, bounce houses, face painting, yoga, vendors, and MORE!
We are on a mission to find a CURE for MPSI-Hurler Syndrome. MPSI is a RARE genetic disorder with a reduced life expectancy. Kids with Hurler Syndrome suffer from enlarged organs, obstructive airways, heart disease, lifelong pain with skeletal deformities, and much more. We need YOU! All proceeds benefit The Kennedy Ladd Foundation, Inc.
The Kennedy Ladd Foundation, Inc. is an approved 501(c)3 and provides an iPad, gift card, screen protector and case to Hurler patients (generally under 2 years of age) going into Bone Marrow transplant. We also fund research to find a CURE for MPS 1 and better treatment options!
Pennies add up to dollars! Every bit counts and if you can’t contribute prayers are powerful! Research costs millions and we are on a mission to find #CURE!
Please pray that we find a cure for MPSI. Please pray that Kennedy and Lincoln Ladd are the exception and live long, pain free, happy lives!
It’s not just monetary donations that count. If you can’t attend please sign up to be a virtual/ghost runner and we can mail you a shirt. But always remember...
Every Penny. Count!
The Kennedy Ladd Foundation
PO Box 932
Kingston TN 37763
#withawarenesscomesacure #fightmps1 #cure2025 #RunForA-RARE-NESS
6:30am: Packet and T-shirt Pickup at the race venue
8:00am: Run for A-Rare-Ness 5k, immediatley followed by the 1 mile fun walk
8:30am: Homerun Derby Registration
9:00am: Wiffle Ball Homerun Derby
10:00am: Wiffle Ball games begin
Bring a chair, bring a cooler, bring your friends for a fun community event. For a CURE, for a CAUSE, for a COMMUNITY!
Stick around for a full day of Wiffle for a Cure, vendors, food trucks, face painting, BOUNCE Houses and More! Let's make this a successful event so that we can continue to do this year after year!
Thank you Patriot Homecare for being our Presenting Sponsor for 2022!
Patriot Homecare accepts most Medicaid programs including BlueCare. We are also a service provider for the Department of Energy's EEOIC program. Under this program current or former workers who have been diagnosed with cancer, beryllium disease, asbestosis, or silicosis whose illness was caused by exposure to radiation, beryllium, or silica while working directly for DOE, DOE contractors, or subcontractors, a designated AWE or beryllium vendor may qualify for in home care at NO COST to YOU from Patriot Homecare. A family member can also provide personal care services to you through this program when they become employed at Patriot
We also are a provider for Veteran's Affairs, Private pay, long term care policies, and Medicare
From Pediatrics to Geriatrics, we are here for you!
If you have any questions about this race, click the button below.
Additional race information can be found at http://www.kennedyladd.org.
$𝟙𝟘.𝟘𝟘 𝕓𝕒𝕔𝕜 𝕒𝕗𝕥𝕖𝕣 𝟜 𝕗𝕣𝕚𝕖𝕟𝕕𝕤 𝕤𝕚𝕘𝕟 𝕦𝕡!
Referral Codes are now LIVE! If you have already registered, you can find your referral code in your RunSignUp profile-
Invite your friends with your special URL to the 2nd Annual Run for A-Rare-Ness and Wiffle for a Cure. If they sign up from that link, you are eligible for a refund up to $10.00 after 4 friends sign up.
There are three main locations you can find your referral code
1. Within your Confirmation Email
2. Within your RunSignup Profile
3. Within the confirmation page following Registration
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