Run 4 Hope: TUBB4A

On May 3, 2025, families and supporters around the world will come together for the Kinslow TUBB4A Foundation’s 4-Mile Walk, Run, or Roll! This event is about more than just movement—it’s about hope, awareness, and making a difference for children and families affected by TUBB4A-related leukodystrophy.

Participate from Anywhere!

Whether you run, walk, roll, or stroll, you can join from wherever you are! Take on the challenge at your favorite park, in your neighborhood, on a treadmill, or even as part of a local gathering with friends and family.

Move for a Cause!

Every step you take helps raise awareness and funds to support research, resources, and community support for TUBB4A families. Let’s unite in motion, share our stories, and bring hope to those affected!

🎉 Celebrating One Year of the Kinslow TUBB4A Foundation & the First-Ever TUBB4A Awareness Day! 🎉

This year marks a huge milestone for the TUBB4A community! On May 2, 2025, we will celebrate the first-ever TUBB4A Awareness Day, a moment dedicated to spreading knowledge, supporting families, and driving forward the mission to find treatments for TUBB4A-related leukodystrophy.

We are also proud to celebrate one year since the launch of the Kinslow TUBB4A Foundation! Over the past year, we have worked tirelessly to connect families, raise awareness, and advocate for research—and we are just getting started!

As we move forward, we remain committed to empowering families, sharing resources, and funding critical research to improve the lives of those affected by TUBB4A-related disorders.

💙 Thank you for being part of this journey—together, we are stronger! 💙

🏆 Get Involved. Make an Impact. Win Big! 🏆

All Run 4 Hope: TUBB4A – Walk, Run, or Roll participants have the chance to compete, connect, and celebrate while supporting a great cause! Show your TUBB4A spirit and take part in our special prize categories.

Three $100 gift cards will be awarded in the following categories:

💙 TUBB4A Change-Maker Award: For the team that fundraises the most money—every dollar raised brings us closer to hope and progress!

💙 TUBB4A Spirit Award: For the largest team—rally your friends, family, and community to join you in making a difference!

💙 Hope in Action Award: A random drawing for participants who share a photo of their walk, run, or roll. Post your picture using #Run4HopeTUBB4A or email it to Sarah@KinslowFoundation.org to enter!

Let’s make this event fun, impactful, and inspiring! Join the movement, share your journey, and you could win!

🚲 Win a Rifton Adaptive Bike! 🚲

We are thrilled to announce a special giveaway for TUBB4A families in the United States! Thanks to a generous donation from Rifton, one lucky TUBB4A family will receive a Rifton Adaptive Bike—designed to bring freedom, mobility, and joy to children with movement challenges.

How to Enter:

✅ Register for the Run 4 Hope: TUBB4A – Walk, Run, or Roll
✅ Be a TUBB4A family living in the U.S.
✅ Sign up by March 30, 2025 to be eligible

One TUBB4A warrior will be randomly selected to receive this amazing adaptive tricycle!

Check out the bike options here: Rifton Adaptive Tricycles

💙 Join us, spread awareness, and give your child the chance to ride with joy!