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KARES 5K: For the Long Run

Fri September 25 - Sun September 27
C
Race Team

Constantly Twinning Team

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Current Team Members:
54
Donate

$5,588

Raised of $2,000

Gavin and Mason's Story

Gavin and Mason are 9 year old twins who were recently diagnosed with a rare genetic condition called KDM5C, which is a gene variant so uncommon that fewer than 350 people world wide have been identified. 

It has been a long journey to say the least, countless appointments, lots of testing and seeing many specialists… two steps forward and one step back as another issue presents. 

There is no cure for KDM5C but we now have a “community” that we can connect with to discuss the many aspects of the disorder. Having the ability to ask other families what has been more effective for them when dealing with the multitude of issues that go along with this defect brings comfort to us. 

Research is a very important part of trying to identify specific variants of this disease and hopefully some day make it possible to “repair” the damaged gene (a dream come true). We understand the importance of research. We have formed a fundraising team for the KARES Virtual 5K for KDM5C. The mission of the KARES Foundation is to improve the lives of those affected by KDM5C-related disorders through advocacy, research, education, & support for individuals and families. Join our team and/or donate today! We look forward to seeing your in person (or remotely) on September 27th at 9:00 am behind the International Motel at the Waterfront Walkway.

Recognitions

$1,000
$2,500
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$5,000

Top Donors

$5,588 Raised By 52 Donors

$250 given by Auntie kelly
$250 given by F.W. Webb
$250 given by International Motel
$250 given by Patricia Sukrachand
$200 given by Nannie & Papa Constant
$250 given by Nannie & Papa Constant
$150 given by Nima Morgan
$150 from Anonymous
$100 given by Crystal McPhee
$100 given by Dean Preston
$100 given by Drew Case
$100 given by Gelinas Family Gelinas
$100 given by John Bennoch
$100 given by Kerri Tkach
$100 given by Kristin Hallowell
$100 given by Mike and Cathy Footer
$100 given by Mimi and Papa Thomas
$100 given by No name
$100 given by Phil Roy
$100 given by Phil Roy
$100 given by Ryan Jarrell
$100 given by Wayne and Pat Sammer
$77 from Anonymous
$50 given by Brenda & Dan Durgin
$50 given by Bridget Edwards
$75 given by Christine Birmingham
$50 given by Dana & Rosa Mitchell
$100 given by Darrin Constant
$50 given by Debbie Little
$50 given by Jeff Demmons
$50 from Anonymous
$50 given by John & Marcia Rogers
$100 from Anonymous
$50 given by Rachel Burden
$50 given by Sara mcdermott
$50 given by Sue Carter
$50 given by Susan Mahar
$50 given by The Flood Family
$50 given by The Macdonalds
$75 given by Thomas Durgin
$50 from Anonymous
$60 from Anonymous
$75 given by Benjamin Maloney
$25 given by Brooke Porter
$50 given by cassie thomas
$85 given by Courtney Tucker
$50 from Anonymous
$50 from Anonymous
$25 given by Marshalls
$25 given by Trudy Newcomb
$45 given by Katy Jarrell
$36 given by Kelly Bowen

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