Go The Extra Mile for HCU

Hello,

As many of you know, I have homocystinuria. I was diagnosed when I was 10, as a consequence of my younger brother's lenses in his eyes dislocating. It's been a long journey full of obstacles (lens dislocations, eye surgery, blood clots, crippling anxiety and more), but it has lead me to where I am now. Along the way I've met some really amazing people that helped steer me in the right direction and get me on track. My journey made me realize how much myself and others needed a community to rally behind them, and in 2016 I helped co-found HCU Network America.

I'm taking part in the 2nd Annual Go the Extra Mile for HCU Virtual Event! In addition to Going the Extra Mile for HCU, my desire is to help spread hope in the lives of the approximate 1 in 200,000 patients with HCU. All proceeds from this race benefit HCU Network America a national 501c3 that provides tools, resources and educational events, to patients, caregivers, and healthcare providers for those in the Homocystinuria (HCU) community. They also have a strong mission to improve upon newborn screening for homocystinuria and fun research.

Please consider supporting me with a tax-deductible donation so that I can reach my goal of $500.00.

Thank you for helping provide hope for the HCU Community!

Danae' Bartke

Patient, Advocate, Executive Director