Dear Friends,
Now more than ever, our little NPO needs your help. What began as a deeply personal mission has grown into a vibrant, determined community — one that uplifts families, supports the advancement of research, and spreads hope for those affected by the rare blinding disease, Leber congenital amaurosis (LCA).
LCA is a rare genetic eye disorder that causes severe vision loss at birth. For many, it’s a diagnosis that arrives suddenly and without answers. That’s why our nonprofit exists: to provide support, drive research, and connect families navigating this journey.
Over the past decade, Hope in Focus has:
- Funded groundbreaking research that’s brought us closer to treatments,
- Created vital support networks for families newly diagnosed,
- And given a voice to those living with LCA.
In an effort to raise funds to continue this important work, I will be walking (well, rolling given recent knee surgery) in support of Hope in Focus's Team Zebra.
I hope that you will join me as I walk alongside other rare disease advocacy organizations from across Connecticut to generate funds for each of our organizations and spread awareness of rare diseases. Whether you choose to walk with meor make a donation to Hope in Focus’ “Team Zebra”, your support means everything.
Every dollar raised by your contribution to my walk or anyone else walking for Hope in Focus and “Team Zebra” brings us closer to a world where rare disease treatments inspire potential, and bring the real possibility of saved and/or restored vision to our loved ones. Whether it's a $100 donation or walking (rolling) alongside me — it all adds up!
Thank you for ensuring Hope in Focus can continue making an impact!
