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Run for Rowan
Penelope’s CSNK2A1 Fundraiser

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$125

Raised of $300

$0
$300

Join us to support Rowan & others with OCNDS!

Rowan was the 50th individual in the world diagnosed with Okur-Chung Neurodevelopmental Syndrome. Now we are approaching 300 diagnosed worldwide. As an ultra-rare genetic syndrome, we are relying on our own fundraising to invest in researching and supporting our community. Join us and run for Rowan and all others with OCNDS! 

Recognitions

Top Donors

$125 Raised By 2 Donors

$75 from Anonymous
$50 on behalf of Rowan Newman

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