2nd Annual Walk & Roll for EDS Awareness

Join us for the 2nd Annual Walk/Roll for EDS Awareness in Clovis, CA, hosted by the Clovis Fresno EDS Support Group!

Date: May 17
Time: 9-11am
Location: Thorburn Park 33 Alamos Ave. Clovis, CA
Registration: FREE! 

**First 60 people to register get a goodie bag of spoonie supports! (electroyte pack, cooling towel, & more!)

Event & Activities:

1. Walk & Roll- Participants can join in on a 1 mile loop (or less if preferred) at their own pace as a way to join in on the EDS Society's International Walk & Roll Challenge and show dedication to supporting EDS Awareness! 

2. Silent Auction- Cruise the aisles and find something from our donors that tickles your fancy!

3. EDS Artists' Exhibit - Check out art by our local EDS members!

4. Resource & Activity Booths- Arts & crafts, information from local providers, materials and hydration materials to try!

WHAT IS EDS? (<--click for more info)
The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.

HOW RARE IS EDS?
Each type of EDS has a different prevalence in the population. Hypermobile EDS (hEDS) is the most common type of EDS by far.
hEDS accounts for about 90% of EDS cases and is thought to affect at least 1 in 3,100-5,000 people. hEDS is currently classified as a rare disorder, but the true prevalence is not known and may be underestimated.
Classical EDS (cEDS) and vascular EDS (vEDS) are much rarer than hEDS. cEDS affects roughly 1 in 20,000-40,000 people. vEDS affects about 1 in 100,000-200,000 people. All other types of EDS are classified as ultra-rare, affecting less than 1 in 1 million people. Several types of EDS have only been reported in a few affected families.