Striding Toward a Future Without NF

DO GOOD | FEEL GREAT

With one in every 2,500 to 3,000 births NF is one of the most common rare genetic disorders in the US that many people haven't even heard of. The need for services for children, adults, and their families within our community is crucial. To meet this need, the NF Network promotes and advocates for scientific research and provides outreach through education and awareness. We need your support to continue these services! 

#NFstrong is NOT a Race, It’s a blanket of love for our community - so enjoy a beautiful morning and take in the scenic views, knowing that every stride is making a difference!

How to Make Your Walk Successful:
· Get excited! You're doing something meaningful that will help the NF community and IT'S FUN!
· Click REGISTER
· Create an account and become a fundraiser
· Get the word out to friends, family, and co-workers about how to support you online or with the donation form (under marketing materials)! 

Register Now

Don't miss out!

Register through May 5th to ensure you get your #NFStrong race tee. Wherever and however you may be participating this year, walk with us and rally together in the fight against neurofibromatosis!

Sign Up

Countdown to #NFStrong Walk/ Fun Run

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Raised of $20,000

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$20,000

Event Details

Saturday, June 1, 2024 
Check in at 9AM - 5K begins at 10AM

Macken Park - Festival Pavilion
1002 Clark Ferguson Dr.
North Kansas City, MO 64116

Learn More about the Walk

About the NF Network

The Neurofibromatosis (NF) Network is the leading national organization advocating for federal funding for NF research. The NF Network’s goal is to eradicate the health issues, pain, isolation and uncertainty that the diagnosis of NF inflicts. We help plan community events, like our #NFStrong events, to provide support, raise awareness, and inspire hope as we continue our efforts for better treatments and a cure for NF.

Learn More about the NF Network

Why We Do What We Do

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