Events
Landon's Story
Place
3100 Main Street
Maumee, OH 43537
Description
Join us for the 1st annual Hope 4 Landon Run & Walk where runners will be running to the finish to raise awareness for the "Worst disease you've never heard of" called Epidermolysis Bullosa (EB). This event is to honor our son Landon and all the others who are fighting this disease everyday for hope of a cure or even a treatment to slow the disease down.
Come meet Landon (psst...it is his birthday as well) and help us raise awareness for his rare genetic skin disease Learn more about it below.
Join us for a fun fall morning 4 mile run at The Shops at Fallen Timbers on October 19, 2019 at 9am. We will have a 1 mile walk to follow after the start of the 4 mile race.
The money raised for this event will go to support research, provide medical supplies to families and patient access to specialists. Many patients with EB travel out of state for care and support, and many insurances do not cover the supplies needed for these patients' care. debra of America is the only national nonprofit organization dedicated to funding research and providing supportive services and programs for those with EB.
Course Map
Perks!
- Fun and unique fall course with photo worthy views
- Make an impact and awareness for a rare condition
- Race Shirt
- Post-race Refreshments
- Photos to Share
Race Shirt
Race Swag - Race shirt you receive if you register by October 4th!
What is EB?
Epidermolysis Bullosa (ep-i-der-mo-lie-sis bu-low-suh), or EB, is a rare genetic connective tissue disorder that affects 1 out of every 20,000 births in the United States (approximately 200 children a year are born with EB). There is no treatment or cure. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. EB affects both genders and every racial and ethnic background equally. Daily wound care, pain management, and protective bandaging are the only options available for people with EB. Read More Here
About The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America)
The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) is the only U.S. nonprofit providing all-inclusive support to the EB Community, through funding research for a cure and by providing free programs and services. The mission of debra of America is to improve the quality of life for all people living in the United States with EB, their families, and caregivers through free programs and services while funding research to find a cure and treatments for Epidermolysis Bullosa. Learn More About debra and EB Here
Race Contact Info
If you have any questions about this race, click the button below.
Directions
The Shops at Fallen Timbers
3100 Main Street
Maumee, OH 43537
MapMyRun Map
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