Aliyah is a bright, charismatic child who was diagnosed with a Chromosomal 3, Trisomy 3q2 abnormality and a metabolic disorder called Very Long Chain Acyl-CoA Dehydrogenase Deficiency. The chromosomal abnormality, T 3q2 has caused Aliyah to develop a myriad of developmental delays, congenital heart defects, diminished muscle tone- hypotonia, and physical abnormalities. VLCAD It is a rare condition in which the body is unable to properly break down certain fats (very long chain fatty acids) into energy. She was diagnosed at birth and has been receiving ongoing therapies and care from the amazing medical doctors and specialists at Maria Fareri Children's Hospital. Recently, Aliyah has been regressing and was diagnosed with the onset of degeneration. She is receiving palliative care and is working on her bucket list. Each day is a gift and we are grateful for the friends, family and community who support Aliyah and her family during this process. Thank you for your generosity and mercy. God Bless you all.
