About Us
When our son Anton (in the white shirt) was diagnosed with Langerhans Cell Histiocytosis (LCH) three months after his birth in 1998 our world was in turned upside down. In those days the survival rate for infants with LCH was less than 50%. It was a very hard time for our family.
We were incredibly grateful that he survived his battle, and we came away determined to help those that would have to follow us down this difficult path. With the support of our family and friends we created Hike For A Cure in 2001 to raise money to fund the research that would lead to a cure for histiocytosis. In the 21 years since that first hike the participants on Hike For A Cure have raised and incredible $2.3M!
Our goal has always been clear: to have a cure for histiocytosis in place by 2021.
It is 2022, and we have effectively reached our goal. The survival rate for LCH is almost 100% once diagnosed and treated. That's the great news. But there are still aspects of the disease that can cause lifetime problems for survivors, and more rare variants of the disease that still threaten the lives of those diagnosed. The researcher organization that we together have funded all these years continues to work hard to help new patients fight this disease.
Your support is the key to helping patients with this disease. As always, all funds raised through H4AC go directly to the Histio Cure Foundation, which sends 100% of those funds directly to researchers focused on histicytosis. The Histio Cure Foundation will continue in the years ahead to support research to help those with the disease. Together we will fund a cure!