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Over 60 children will be newly diagnosed at Upstate Golisano Children’s Hospital this year. The impact of a diagnosis is far reaching, affecting not only the child but their family and community. Our mission – to help local families who have already heard “your child has cancer”, as well as those who will soon hear those dreaded words.
The Dr. William J. Waters Center for Children’s Cancer and Blood Disorders at Upstate Golisano Children’s Hospital serves close to 700 children each year while conducting research for tomorrow’s cures. Paige’s Butterfly Run, Inc. is a key part of these services, as the funds we raise support pediatric cancer research and patient programs. The donations you make today make a difficult journey a little easier and provide hope for tomorrow.
Money raised will support the following initiatives and help fight pediatric cancer in Central New York.
Paige’s Comfort Kit Fund
The Comfort Kit program provides each newly diagnosed child with a backpack, which we hope makes a difficult journey a little easier, that contains the following:
Paige’s Family Assistance Fund
Assisting families at the Dr. William J. Waters Center for Children’s Cancer and Blood Disorders at Upstate Golisano Children’s Hospital impacted by financial costs for travel, accommodations, out-of-pocket expenses for food, phone bills, household bills and loss of income as well as unpaid medical bills.
Paige’s Comfort & Fun Fund for Families
Providing the Child Life Specialists on the inpatient and outpatient floors of the Dr. William J. Waters Center for Children’s Cancer and Blood Disorders at Upstate Golisano Children’s Hospital with the resources for educational and teaching materials about new diagnosis, family meals, celebrations for birthdays and holidays, and to generally lighten their lives when they are in the hospital for treatment.
Paige’s Outpatient Clinic Fund
Providing the Child Life Specialists on the outpatient clinic of the Dr. William J. Waters Center for Children’s Cancer and Blood Disorders at Upstate Golisano Children’s Hospital with the resources for educational and teaching materials, celebrations for birthdays and holidays, and art and craft supplies. These items help patients and families help to provide a safe and fun space, despite all of the chances in their lives.
Paige’s Events and Activities Fund
Sponsors ongoing events throughout the year providing patients and families the opportunity to attend special events outside a medical setting. This allows families a chance to enjoy their time together without added medical concerns. Families are also able to connect with their peers and find support amongst each other.
Some of the events offered to patients and families include:
*Events have not resumed yet due to COVID-19.
Paige’s H.O.P.E Support Fund
The sponsorship of H.O.P.E. (Helping Oncology Patients and Parents Engage) events provides several opportunities for pediatric cancer patients, caregivers, and siblings to connect with other families battling a pediatric cancer diagnosis during inspirational and fun activities outside of the hospital in a non-medical environment.
Paige’s Support of “Champions Again” Fund
Provides special educational programming for pediatric patients at the Dr. William J. Waters Center for Children’s Cancer and Blood Disorders at Upstate Golisano Children’s Hospital.
Paige’s Fund for Transportation
Upstate Golisano Children’s Hospital treats children with cancer from a 17-county catchment area. About 50% of patients are outside Onondaga County, with some traveling nearly 100 miles each way for treatment. Those families living furthest from the medical center, those whose child has spent relatively longer on treatment and those requiring frequent outpatient visits are most impacted by the hidden out-of-pocket costs such as travel.
To decrease this burden, Paige’s Fund for Transportation provides families whose child is receiving active therapy and using a private vehicle for transportation gas cards to offset this expense.
Paige’s Survivor Wellness Fund
The Survivor Wellness Program provides long-term follow up care for individuals after they have received treatment for childhood cancer at the Dr. William J. Waters Center for Children’s Cancer and Blood Disorders at Upstate Golisano Children’s Hospital. It helps cover unmet medical needs related to the effects of childhood cancer treatment including dental, fertility preservation and infertility assessments, medical, and audiology.
Having a cancer diagnosis at any age is stressful, but being diagnosed and going through treatment as an adolescent or young adult creates additional and unique psychosocial stressors. Many adolescent and young adult (AYA) survivors describe feeling different than their peers and struggling to identify who they are and where they are going post-treatment. Paige’s Survivor Wellness Fund provides support for patients in this age group to participate in national program such as Camp Mak-A-Dream and Cancer Connections AYA conference.
Paige’s Bereavement Fund
Provides financial assistance to families towards funeral costs and grief counseling after their child has passed. Paige’s Bereavement Fund also supports the annual remembrance service which honors all the children who lost their battle to childhood cancer at the Dr. William J. Waters Center for Children’s Cancer and Blood Disorders.
Paige’s Cancer Research Fund
Paige’s Butterfly Run supports pediatric cancer research being done at SUNY Upstate and Golisano Children’s Hospital, both in the laboratory and through clinical research studies. The pediatric oncology program at Golisano Children’s Hospital is an active participant in national consortiums such as the Children’s Oncology Group, Head Start studies for infants with brain tumors, and NACHO. This allows patients treated at our center to access to state of the art care through clinical research trials.
Paige Yeomans Arnold Memorial Endowed Professorship
A permanent endowment established with the Upstate Foundation used to support the Department Chair of Pediatric Oncology at Upstate Golisano Children’s Hospital.